Our main goal
Equality of care for people living with rare diseases
Our main goal is equality of care for people living with rare diseases (PLWRDs) through access to appropriate diagnosis, treatment, and healthcare services. This presents an opportunity for collaboration to improve the South African health system, and health outcomes for people with rare diseases.
Who has a rare disease?
0
in 200 people
0
people in South Africa
0
Rare Diseases
Issues we face
The problems with rare diseases
The problems we face dealing with RDs.
01
Lack of Coordination
02
Lack of Policy
03
Lack of Data
